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What our community needs for World Down Syndrome Day

In my awesome and snarky online group for parents and family members caring for their loved ones with Down Syndrome, we decided to protest the macabre parade of disability porn that gets sent to us each year around this day, March 21, 2021, and also the ENTIRE MONTH OF OCTOBER.  I'm certainly learning more about abilism myself but the disability porn (I'm totally guilty of this in past years and I'm learning more so trying to do better) gets a bit much when it's all magic and bubbles when we're in the thick of having our folks deemed equal as humans, worthy of mistakes, mess, and adequate health care.

I'm thinking instead of blasting balloons and rainbows (I FREAKING LOVE RAINBOWS AND BALLOONS), I wanted to say more about what I need for my daughter, who is learning to write and self advocate but is still needing support. 

I need you to listen more to self advocates with Down syndrome. They should be centered, not me as a parent.

I need you to check your politics and how...

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